Wednesday, 25 November 2015

I is for Immunisation

It was early spring. At a gathering of friends my son began to cough. His face turned red. He calmly got up and walked away doubled over. Concerned adults looked on. One jumped up and asked “is he choking?” This was the aftermath of whooping cough - the 100-day cough.

On a grey rainy day, listening to the radio, a segment on whooping cough was announced. There’s a spike in whooping cough (NSW Health recorded 3134 cases in 2014 and 8621 cases so far in 2015). Guest, Peter Collignon, ANU Medical school, spoke about timely molecular tests, which detect the DNA of bacteria that cause whooping cough.  The infectious nature of this respiratory disease produces toxins which damage airway linings. Infants have very little protection and are at higher risk. The vaccine has 75% + immunity, waning over time.

Prof Peter McIntyre, Children’s Hospital at Westmead speaks in an informative short film. Parents explain the tragic death of their infant who had whooping cough, asking “why don’t people know, why don’t adults know they need a booster?”

For my family, the beginning of spring had seen us with whooping cough, times four.  The first person to get sick in the family had become the guinea pig.  I consulted Healthdirect Australia which explains early identification and a specific antibiotic that lessens symptoms.

It took three appointments with GPs before we were on the right track to diagnosing whooping cough. By this time my second whooping cough victim was also moving from coughs to night time coughs, gasps and some vomiting. Whooping cough can be difficult to identify unless it is picked up in the first few weeks.

Health authorities advocate best protection is through immunisation. Immunisation may have problems but leads to herd protection.  The Australian government report, Immunisations myths and realities, responds to arguments against vaccination. Whooping cough is still here but immunised people are much less likely to have severe complications.

"babies in a cloud of cotton wool"
Pregnant women are encouraged to get free vaccinations passing on some level of immunity. Also fathers, grandparents and anyone around newborns are encouraged to have boosters. Someone said “It is a bit like wrapping babies in a cloud of “cotton wool”.

Campaigns such as Save the date to vaccinate, Apps to download or printed immunisation schedules are helpful reminders.

Emotionally draining for families

Doctors inform and we benefit from their clinical experience and knowledge of evidence based medicine. This is invaluable. When people get sick under these circumstances there are a lot of intangibles which can be emotionally draining. Where did it come from and who else is affected? For parents who are lacking sleep, asking the right questions can be difficult. I found it helpful to call Healthdirect or NSW Health, Communicable Diseases. The National Centre for Immunisation Research and Surveillance, NCIRS provides consumer resources.

I heard varied medical advice amongst families about diagnosis, nasal or throat swabs, test result waiting times, staying home or not whilst waiting, who should take the antibiotic, be given a booster or stay home if symptom free.

In my neighbourhood, none of the three chemists stocked the antibiotics for children in liquid form. Parents with sick children, trailed about trying to commence the antibiotic as soon as possible.

Adolescents take part in school immunisation programs. Some avoid their injections. Department of Health shares tips for parents about how to make this easier, reducing fear and apprehension. Teens who don’t want to line up in a large hall may find medical practices with experienced nurses and doctors reassuring.

AWCH Child Health Library has a number of useful resources to help prepare yourself and your child for a vaccination:

    An end to whooping cough?

    In September I wrote, “Its night-time and I hear my children coughing, sometimes in unison, gasping for air and gagging. The oldest didn’t get early diagnosis or antibiotics and the coughing started a month ago.” An end to whooping cough is not in sight but will awareness change its impact?



    Jillian Rattray
    AWCH librarian
    November 2015

    Thursday, 29 October 2015

    Parenting children with health issues and special needs: essentials for raising happy, healthier kids



    Condensed version. 2009.
    By Foster W. Cline, M.D. and Lisa C. Greene

    Just in case you have read too many parenting books and your interest factor has plummeted, this little book might spark your imagination and hand over some useful parenting tools.




    What makes the difference here? Children with health issues or special needs are the focus and parenting tools described, go with what is already working in families. The authors talk about “consultant parents” and before you wonder if this is just an idea floating around, this approach comes from many years of hands-on experience and research.

    The book encourages parents who find it challenging to know how to motivate their children to take medication or make positive health choices, such as when to fit in physical therapy. The “consultant parent” is not a “helicopter parent” or a “drill sergeant”. Read about ways to inspire children to make healthy choices and look after themselves. This approach focuses on family, building healthy relationships with “love” as the underpinning ingredient.

    About the authors: Foster Cline is a well-known North American psychiatrist, physician, author and international speaker. Lisa Greene is a mother of two children with cystic fibrosis and a parent educator. She is raising her children with Love and logic parenting tools.

    Families of children with cancer were given the book through the American Childhood Cancer Organization, Inland Northwest. This book is the condensed version of award-winning Parenting children with health issues, link to the web page for families. Resources, include video, audio and articles from the Blog. Topics span from parenting children of different ages, including teens, transition, school life, couples relationships and community. Special feature articles may capture an interest, Caring and compassion: the do’s and don’ts for giving and receiving support during hard times.
     
    AWCH Library has a copy available for loan for people within Australia, please email your interest.


    Jillian Rattray
    AWCH librarian (http://Library.awch.org.au)


    October 2015


    Thursday, 22 October 2015

    H is for Healthcare preparation

    “…positive healthcare experiences for children shape their long term good health and wellbeing.” (1)


    Why prepare for healthcare?
    “It took me lots of work to get over my fear of dentists!” Rachel exclaimed. As a child, dental surgeries were “no go zones” with metamorphosis taking place. She became a scratching, biting “wild child”. Now a mother of three, family dentist visits are routine.

    Does this remind you of a childhood experience? Healthcare professionals (HCPs), know something small to an adult may be traumatic for a child.

    AWCH helps parents
    AWCH was amidst an emerging “groovy” movement of international organisations in the 1960’s -70’s supporting emotional care of children in hospital. Others were Action for Sick Children, EACH and Children in Hospital Ireland, yeah baby!

    Terrified children aren’t peeled from parents/carers during healthcare today. This is not something to blink at, for a long time parents have been involved in their child’s hospital care (Please don’t leave me film, 1979). AWCH put this best practice in motion in Australia, now seen as the norm, so much so that most people can’t recall it any other way.

    AWCH educated parents in the 1970’s about healthcare preparation with AWCH Barwon branch launching a poster (1979), Is your child to be hospitalised? How would you explain to him?

    AWCH Child Health Library has great reads for children on healthcare familiarisation including picture books.

    Australian parent resources have evolved in the last few years:
    • Child life therapists are healthcare professionals helping children and young people cope with medical procedures and hospital.  Keeping kids needs in the picture, by Renee Campbell (Child Life Therapist) is for parents supporting their children through medical imaging.
    • The Australian Commission on Safety and Quality in Healthcare, NPS Medicine Wise and AWCH partnered to create awareness for parents on medical imaging and kids. There’s now an App for parents and professionals.

    Hospital familiarisation and healthy kids
    AWCH WA runs Hospital Familiarisation Program (HFP). “Designed to prepare young healthy children for possible hospitalisation or visits to the doctor or dentist. The aim is to minimise anxiety, fear and misconceptions children may have about medical intervention.”

    Sydney Children’s Hospital, Randwick, Health education unit offers “Hospital Explorer Box: a play and learn resource kit for stage 1 students” (contact Schools Project Officer, Health Education Unit). Other community hospital incursions are available.

    Thanks to the children who coloured in cut-outs
    from Althea adding their colourful interpretation.







    Preparing in an emergency?
    One quarter of children in NSW visit an emergency department in a year. In an emergency parents may not pack a hospital bag especially not with their child’s help (children learn this way). Also stressed parents may not bring a toy, book, soft toy or comfort blanket. Going out usually involves taking a drink and snacks but in an emergency and chance of medical procedure, don’t give food or drink.  Parents can ask health professionals about medical procedures and become advocates for their child, taking a moment to ask questions if unsure. Parents are there to comfort kids.

    If you liked this blog, you might also like The three little “P’s” - Playgroup and Peppa Pig which touches on one parent’s traumatic experience of hospital without preparation. We’d love to hear from you if you have related comments/experiences.



    Jillian Rattray
    AWCH librarian
    October 2015

    Wednesday, 7 October 2015

    Jessica's box

    Written and illustrated by Peter Carnavas.

    New Frontier publishing. Cerebral Palsy Alliance edition, re-released 2013.

    Paperback, ISBN 9781921928581

    A book that takes you on a journey, ending with a child who smiles as she finds out about herself

    This charming story book is all about Jessica and the friendships she hopes to make as she starts school and will spark the imagination of preschool and kindergarten children. Author and illustrator, Peter Carnavas, has captured some of the fearful feelings young children have when they begin in a new situation and as they find ways to adjust.

    Jessica comes up with an idea, she takes a large brown box to school and over a few days we see what happens as children react to what is inside the box. Jessica thinks of different special things to put inside. At first it doesn’t turn out as Jessica would like leading to sadness and disappointment. Dejected Jessica plonks the box on her head only to find she has started a game of hide and seek with a new friend.

    Written in a warm tone, Jessica’s family encourage her as she thinks of ideas and a cute little dog and bird accompany her. The supportive family are delighted when Jessica finds a new friend. Jessica is bright, creative and energetic and readers are taken to an imaginative childhood place.

    Peter Carnavas' illustrations really compliment the story. The bright water colours followed by sepia blues and greys, show both the energy and expression of being a child and the disappointment and sadness that can follow when friendships don’t form.

    Altogether this is a book that takes you on a journey, ending with a child who smiles as she finds out about herself, learning she is the best thing to come out of the brown box.
    An award winning Australian book and this edition was commissioned for the Cerebral Palsy Alliance. The text is identical to the earlier editions, however the illustrations here show Jessica in a wheel chair, and so this will be useful for primary schools and kindergartens focusing on social inclusion.  A media release for the book describes why it is a good fit for the Cerebral Palsy Alliance’s school disability awareness program Just Like You!

    This mini edition is small enough for children to hold whilst in school reading groups and there is a larger special hardcopy.

    Jessica’s box is available for loan from the AWCH Library. 


    Jillian Rattray
    AWCH librarian
    October 2015